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Nystagmus Network (NN) News release


Nystagmus Network (NN) News release

For immediate release, 1 September, 2015

Wobbly Wednesday walkaround, a simply simple idea

Supporters of Nystagmus Network are being encouraged to organise a Wobbly Wednesday walkaround on or around Wednesday 4 November to celebrate the charity’s annual awareness day.  NN is leading the campaign to highlight the complex eye condition nystagmus, which affects around 1 in 1,000 people.

A Wobbly Wednesday walkaround works on the principle that ten people walking one mile can raise more awareness than one person walking ten miles.  The idea which is new for this year’s Wobbly Wednesday, is easy to organise and needs no special equipment.  All you need is a space big enough to walk around.  NN is suggesting that Wobbly Wednesday walkarounds take place between Saturday 31st October and Friday 6th November to maximise awareness.

Richard Wilson, Chairman, Nystagmus Network said: “I love the simplicity of this idea.  Taking part in a Wobbly Wednesday walkaround is a great way to raise awareness of nystagmus and have some fun with a group of friends at school, work or at home with your family.  How far people walk is not important it’s spreading the wobbly word that counts.”

Anyone can take part in a Wobbly Wednesday walkaround: at school walk around the playground, at work walk around the carpark, in town walk around the park or in the country walk around the field.  A wheely walkaround might be an option for mums with pushchairs, people in wheelchairs or cyclists and skaters.  For an extra wobbly walkaround add some jelly and ice cream at the end.

To take part simply email info@nystagmusnet.org to register your Wobbly Wednesday walkaround.  There is a Facebook group especially for Wobbly Wednesday supporters https://www.facebook.com/groups/WobblyWednesday/, and a page on the NN Website http://www.nystagmusnet.org/cms/index.php/about-us/wobbly-wednesday. In previous years supporters have embrace the jelly theme on Wobbly Wednesday in a variety of fun ways including selling jelly pots at break time, throwing jelly at teachers and making jelly laced with vodka.

NN is the UK’s leading charity for nystagmus it provides support and information as well as encouraging and funding research and raising awareness of the condition.  For more information about Nystagmus Network, contact John Sanders, Information and development manager, email: john.sanders@nystagmusnet.org Tel: 029 2045 4242.  Helpline: 0845 634 2630, info@nystagmusnet.org  website: http://www.nystagmusnet.org




For further information contact:

Steve McKay, Press officer

Tel: 01626 206726

Email: steve.mckay@nystagmusnet.org




John Sanders, Executive Manager

Tel: 029 2045 4242 or 0845 634 2630

Email: john.sanders@nystagmusnet.org


Notes to Editors:

  • Attached is a Wobbly Wednesday walkaround poster.
  • Nystagmus means involuntary movements of the eyes; it affects around 1 in 1,000 people.
  • Nystagmus Network was set up in 1984 to support people with nystagmus and encourage research into the condition. Nystagmus Network is a registered charity (number 803440). Sir James Galway and Steven Reid are patrons of NN.
  • Nystagmus Network has over 700 members and was the first support group in the world for people with nystagmus.
  • In 2014 Nystagmus Network funded research in Cardiff, Leicester and Southampton.
  • Wednesday 4th November 2015 – Wobbly Wednesday nystagmus awareness day.
  • Telephone: 029 2045 4242 or 0845 634 2630
  • Website: www.nystagmusnet.org
  • Twitter: twitter.com@press_nystagmus and twitter.com@nullpoint15
  • Facebook: www.facebook.com/NystagmusNetwork





Steve McKay,

Press officer, Nystagmus Network


Email: steve.mckay@nystagmusnet.org

Website: www.nystagmusnet.org

Twitter: twitter.com@press_nystagmus

Facebook: https://www.facebook.com/NystagmusNetwork


 Nystagmus Network is the leading source of support, information and advice for people affected by the complex eye condition nystagmus. 


Wobbly Wednesday 4th November 2015 – Nystagmus awareness day

Contact Nystagmus Network for your supporter pack, Tel, 029 2045 4242 or 0845 634 2630, email, info@nystagmusnet.org